Pulmonary hypertension is a rare disease that affects the right side of the heart. It is even rarer in children. It can be caused by other heart or lung defects but sometimes it can be caused for no apparent reason. In this case the disease is considered to be idiopathic and is extremely rare.
PH causes pressure in the right side of the heart causing it to work much harder than it should. This can cause dangerous side-effects--primarily poor oxygen delivery to the rest of the body and eventually death.
Our mission is to fund research into idiopathic pulmonary hypertension causes, treatments, and cures and to raise awareness of pediatric pulmonary hypertension specifically.
Working together we hope to not only advanced a cure Vera, but also other children (and adults) suffering from this extremely deadly disease.
We are currently in the process of filing for non-profit status. Donate today to help bootstrap the foundation!
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In August 2016, Vera was born in a peaceful, beautiful birth in California. Minutes after being born, however, it became clear she wasn't getting enough oxygen. She was rushed to the NICU where she began fighting for her life.
For three excruciating months, Vera's life was hanging by a thread as she underwent some of the most advanced treatments available in the world at research hospital Stanford Children's Hospital in Palo Alto, California. Eventually it became clear Vera was battling an extremely rare form of idiopathic pulmonary hypertension, a disease for which there is no cure--yet.
In 2018, Vera's Hope Foundation was formed to help bring about awareness and a cure for pulmonary hypertension.
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